NCI Extramural Data Access Committee
Purpose
The National Cancer Institute's (NCI) Extramural Data Access Committee (DAC) implements the National Institutes of Health (NIH) data sharing policy for many NCI-supported and -conducted genome-wide association studies (GWAS). This Committee will review all requests from the research community (including NIH intramural staff) for controlled access to GWAS data, as well as to other cancer-related datasets for which the committee is responsible.
The Committee evaluates if the request conforms to NIH policies and procedures, including consistency of the proposed research use with the data use limitations stipulated by the institution that provided the GWAS dataset(s).
- DAC Charter
- NCI's DAC is composed of a minimum of ten NCI senior staff members with relevant scientific, bioethics, and human subjects research expertise. View the list of DAC Members
Available Dataset
- GWAS of Neuroblastoma
Note: Links to additional datasets for which the NCI DAC is responsible will be added as they become available.
Overview of Data Access Request Process
Requesting Investigators
Step #1:
Requesting Investigator submits Data Access Request (DAR) through the Database of Genotype and Phenotype (dbGaP), thereby agreeing to conditions described in the Data Use Certificate (DUC).
Data Access Committee
Step #2:
DAC members review each DAR and vote to approve or disapprove requests. Ideally, applicants will receive a DAC decision within 15 working days from the submission of their DARs.
Requesting Investigators
Step #3:
Approved Requesting Investigators receive data, conduct secondary analyses, and report on progress annually.
For more information, contact the NCI DAC at ncidac@mail.nih.gov.
